Data requests

The Finnish Cancer Registry is a national register of the National Institute for Health and Welfare (THL) and it is maintained on the basis of specific legislation. Data are collected only for statistical and scientific research purposes.

The National Institute for Health and Welfare (THL) may grant permission to disclose data contained in the register for scientific research and statistical purposes, as separately laid down under section 4 of the Act on National Personal Records Kept under the Health Care System (556/89) and Chapters 2–4 of the Personal Data Act (523/1999). THL's application for permission

Other cancer data will be disclosed at the discretion of the Chief Medical Officer of the Finnish Cancer Registry. The data will be disclosed in non-identifiable table format to ensure that the privacy of the registered persons will not be jeopardized. The person making the data request is obliged to give an explanation to the controller of the register, for which purpose the requested data will be used.

For further advice and information, please contact: kirjaamo(at)cancer.fi or tel. +358 46 920 7876. 

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Before filling in this section of the form, please check the Finnish Cancer Registry's variables and read the register description on the following address:

http://www.cancer.fi/syoparekisteri/en/registration/register-description/

For further information on the variables, please contact the persons in charge of the register, who are mentioned in the register description.